Ivan was a premature baby who by dates should only have been 4wks
early, but turned out he must have been alot lot earlier than first thought. Right from the word go Ivan had problems feeding
which was just put down to him being early.
They did test, after test on him and they all came back as normal,
which was a great relief to us as first time parents. Ivan gradually put weight on and developed but at a much slower rate
than other children. We discovered early on that his eyesight was not very good, and indeed had cataracts in both eyes. Feeding
continued to be a issue with Ivan only being able to manage baby like foods. Again being put down to him still catching up.
At the age of three, Ivan was still not making any attempt to walk,
and was still very small in stature. He relied on us for all his needs. and what made the situation worse was that he had
no way of communicating. He wasn't vocal and didn't point at things- which as you can guess was frustrating as parents, as
was it frustrating for him, he seemed to be locked in his own silent world.
We continued to ask Doctors what was wrong with our child, but all the test they suggested
came back as normal, so again they put it down to him being premature. Finally at the age of five a paediatrician agreed to
do a M.R.I scan, and when we got the results we were dumbfounded. It turned out that my son had a rare brain condition called
Ageneis of the Corpus Collosum ( the structure that connects left and right sides of the brain was missing). We asked many
questions but only received a few reply's as the doctors just didn't know if Ivan would talk, or walk etc and from a parents
point of view, this just wasn't what we wanted to hear.
